World Sickle Cell Day

My sister wrote a letter to us today on our family whatsapp group. I asked her if I could share and she replied “definitely sis”.

Here goes:

Dear OBF
Today June 19th is World Sickle Cell Day!! Celebrating warriors like Sever and remembering those who are no longer with us; Ernie, Joe and Hembasoon. 

In creating awareness on this day, I pray that my Sever (since we have 3 Sever's in the family 😃) will be the last to have this challenge... do we have any others?... please let us know.  
I remember Soon T once posted on Facebook that she wouldn't wish this life on anyone, not even an enemy and she would come with a cane to beat up anyone who decides to get married without testing or going ahead even after testing and discovering that your genotypes don't match. I stand with her still.

So please dear family, test well 3 times and with different RELIABLE labs/hospitals. 
Meanwhile it's not a death sentence, you know now, Soon T showed us that life is for living. ❤️💃🥂

Additional information:

  • OBF (One Big Family) – A large group of my cousins and I… connected by a common grandfather… My maternal grandfather.
  • Soon T (Also Hembasoon) – an OBFer lost to sickle cell. I wrote about her in Asomy
  • Joe – another OBFer lost to sickle cell.
  • Ernie – yet another OBFer lost to sickle cell.

Sever is my sister’s son… He’s a very strong kid…Waring sickle cell with all the strength that he has.

This is a sickle cell awareness post

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Author: Emaistace

wife, mom, sister, daughter, aunty, friend. writing my everyday thoughts as they pop up.

7 thoughts on “World Sickle Cell Day”

  1. I have never met sever in person, but I have met him through his mum. He is really a warrior, a strong kid I must say.
    Sending hugs to him and other warriors out there.❤️

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  2. Hmmmm I watched my two siblings die in my hand due to sickle cell anemia 😢 I don’t wish it on anyone,after all the pains they go through they still did not make it .
    You’ll please be careful and don’t joke with ur genotype while choosing a life partner.🙏

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