World Sickle Cell Day

My sister wrote a letter to us today on our family whatsapp group. I asked her if I could share and she replied “definitely sis”.

Here goes:

Dear OBF
Today June 19th is World Sickle Cell Day!! Celebrating warriors like Sever and remembering those who are no longer with us; Ernie, Joe and Hembasoon.

In creating awareness on this day, I pray that my Sever (since we have 3 Sever's in the family 😃) will be the last to have this challenge... do we have any others?... please let us know.
I remember Soon T once posted on Facebook that she wouldn't wish this life on anyone, not even an enemy and she would come with a cane to beat up anyone who decides to get married without testing or going ahead even after testing and discovering that your genotypes don't match. I stand with her still.

So please dear family, test well 3 times and with different RELIABLE labs/hospitals.
Meanwhile it's not a death sentence, you know now, Soon T showed us that life is for living. ❤️💃🥂

Additional information:

  • OBF (One Big Family) – A large group of my cousins and I… connected by a common grandfather… My maternal grandfather.
  • Soon T (Also Hembasoon) – an OBFer lost to sickle cell. I wrote about her in Asomy
  • Joe – another OBFer lost to sickle cell.
  • Ernie – yet another OBFer lost to sickle cell.

Sever is my sister’s son… He’s a very strong kid…Waring sickle cell with all the strength that he has.

This is a sickle cell awareness post